Take action

Action is now needed to secure these vital services across the UK!


Courtesy of Sussex and East Surrey Specialist perinatal mental health service

Perinatal mental health has moved up the political agenda in recent years and funding has been allocated by governments in England and Wales for specialist perinatal mental health services.  However, decisions about whether and how much to invest money is increasingly being taken at a local level.  The Everyone’s Business campaign needs your support to ensure local decision makers, providers and commissioners heed the Call to ACT NOW.

Below are some of the ways you can take action on behalf of the women and families in your area. Local champions across all parts of the UK are needed to influence service provision by ensuring decision makers in every nation, region and locality of the UK urgently invest in perinatal mental health provision:


    1. Get in touch if there is an upcoming strategic event or meeting in your local area where campaign materials / presentations can feature – or if you have any other ideas for how the campaign can support: info@everyonesbusiness.org.uk
    2. Use our campaign maps to identify the level of specialist perinatal mental health service provision in your area; share this with local decision makers, alongside the reasons why specialist services act as a catalyst for change across the whole pathway
    3. Share your area’s starting point and feature images of the maps on social media (#everyonesbusiness) and within local media to highlight where funding for services is still needed or indeed to celebrate progress to date and inspire other
    4. Include the costs of perinatal mental illness and real life stories when explaining to decision makers what is needed in your area. From the campaign’s independent Evaluation report summary (phase 1) we know this combination of winning hearts and minds is a key driver of change
    5. Know the Office of National Statistics’ annual birth rate for your area. This helps to work out the size of service your area requires and even where it should be located. Areas with a birth rate of less than 6,000 babies per year may need to join with neighbouring areas to commission a joint pathway of care
    6. Share models of good practice with decision makers, providers and commissioners in your area.  On a national and local level, models of good practice and guidance for specialist perinatal mental health services have been established.  Please see examples below:

National

Local

Training

In all of the UK’s four nations, we call for perinatal mental health training to be incorporated into the undergraduate and postgraduate syllabuses for all GPs, health visitors, midwives, obstetricians and mental health professionals.

We also call for the establishment of a national training strategy to make sure all relevant existing health professionals, and others who work closely with families in the perinatal period, including those in the community and voluntary sectors, have access to dedicated high-quality training.

Health professionals and others who work with families in the perinatal period can play a significant role in promoting good mental health, preventing mental health problems and making sure women and their families receive the best care, treatment and interventions.

Universal health professionals such as GPs, midwives and health visitors are ideally placed to care for women and families affected by a mild to moderate perinatal mental illness. They are also well positioned to identify women with, or at risk of, a severe perinatal mental illness and to refer them to specialist perinatal mental health services and provide ongoing support.

Not just Scotland

Scotland is the only UK nation to have a perinatal mental health training curriculum for people working in healthcare. We must make sure England, Wales and Northern Ireland follow their example, and implement the curricula.

Skills that all health professionals caring for women during the perinatal period should have

  • An understanding of the importance of identifying women at risk of developing serious mental health problems and the associated risk factors.
  • An ability to understand and distinguish normal emotional changes and common difficulties from a mental health problem, and being able to recognise the first signs of a problem.
  • Good listening skills and the ability to offer support, reassurance and understanding.
  • Knowledge of different types of disorders, their clinical features and an ability to distinguish between them.
  • Awareness of when and how to make referrals, and the range of different treatment options available.

Source: MIND. Out of the blue? Motherhood and depression. 2006.

Community

Community specialist perinatal mental health teams

We call for community specialist perinatal mental health teams meeting national quality standards to be available for women in every area of the UK. As our map shows, these services are not available for all new mothers in the UK. Many areas do not even have local plans in place to develop these services. This is despite comprehensive models showing that these specialist services are both necessary and possible.

Not having access to a specialist team, or if a service falls short of nationally agreed standards, can mean the lives and life chances of women and their babies and families are put at unnecessary risk. See our Counting the costs section.

To end this unacceptable postcode lottery, community specialist perinatal mental health services must be available throughout the UK and meet nationally agreed standards.

UK Specialist Community Perinatal Mental Health Teams 
Please note, levels of provision in this map have been assessed using the best information available to us from local experts but have not been independently verified. Please contact info@everyonesbusiness.org.uk if you suspect any inaccuracy or know of recent developments that may alter the level of provision level in any area listed here.

 

Red areas

no specialist team exists.

Pink areas

Some extremely basic level of provision exists but currently falls short of national standards and needs expanding.

Amber areas

Some basic level of provision exists but currently falls short of national standards and needs expanding.

Green areas

Women and families can access treatment that meets nationally agreed standards.

 

The role of specialist community perinatal mental health teams

Specialist community perinatal mental health teams care for women with serious mental illnesses and complex disorders. Teams that meet nationally agreed standards are members of the Royal College of Psychiatrists’ Quality Network.

The role of a specialist community perinatal mental health team is to:

  • respond to a woman’s needs in a timely manner, have the capacity to deal with crises and emergencies, and make assessments in a variety of settings, including homes, maternity hospitals and outpatient clinics
  • have close working links with a designated mother and baby unit
  • care for women discharged from inpatient mother and baby units
  • work collaboratively with colleagues in maternity services, including providing a maternity liaison service
  • work collaboratively with adult mental health services to provide support to women with previous or longstanding mental health problems
  • offer pre-conception counselling to women with pre-existing mental health problems.

Courtesy of Sussex and East Surrey Specialist perinatal mental health service

Accountability

We call for Accountability at a national level for perinatal mental health care in the UK.

It should be clear which ministers, commissioners and health providers are responsible for making sure there are sufficient, high-quality services for all the women who need them.

Levels of provision should be monitored, and people and organisations held to account for gaps in provision.

We also call for national strategies to rectify the urgent shortfall of specialist inpatient mother and baby units. At present, there is an estimated shortfall of mother and baby unit beds across the UK.

The role of accredited specialist inpatient mother and baby units

Inpatient mother and baby units admit seriously mentally ill women in late pregnancy and the first year after birth, together with their infants. They aim to admit women directly without the need for prior admission to a general adult psychiatric ward.

Without these units, women have to be separated from their babies, which can be detrimental to the women and their babies.

There are 15 inpatient mother and baby units in England and two in Scotland. In Wales and Northern Ireland, there is not a single specialist inpatient mother and baby unit.

All mother and baby units belong to the Royal College of Psychiatrists’ Quality Care Network and are inspected annually using national quality standards.

All mother and baby units continuously assess a mother’s care of and attachment to her baby to determine the level of supervision, support and guidance the mother requires to meet the emotional and developmental needs of her infant.

The staff at an inpatient mother and baby unit will have the skills needed to promote attachment and parenting interventions. Many units will also have psychologists who provide additional expertise in psychological treatments and parenting interventions.

West Scotland mother & baby unit

Morpeth mother & baby unit

Please note: the phone number shown at the end of the video is no longer active.

 

Essential reading

Essential reading

Find more resources on perinatal mental health in our Resource Hub

Following documents with links:

Practical tools

Following documents with links here:

We need to ACT NOW

The Everyone’s Business campaign’s Call to ACT focuses on three key areas, which you can find out more about by clicking on the links below:

Accountability

Community

Training


In order to ensure all women throughout the UK who experience a perinatal mental health illness receive the care they and their families need, wherever and whenever they need it, the campaign is focussing particularly on the following right NOW:

New government funds provided for specialist perinatal mental health services are not wasted, absorbed elsewhere or misspent. They should deliver well-planned and coordinated services.

This is because:

  •  In the past, national funding pledges have not necessarily been translated into new services on the ground
  • Despite encouraging funding announcements, there is no legal obligation for CCGs in England to spend these funds on the specialist perinatal mental health services they are intended for. This is why we want each CCG to plan how it will spend its money now.

Outstanding areas of need must be funded in Scotland, Northern Ireland and Wales

This is because:

  • Despite clear SIGN guidelines, the Scottish government has yet to pledge funding for urgently required specialist perinatal mental health services.
  •  Despite clear NICE guidelines, the Northern Ireland government has yet to pledge funding for urgently required specialist perinatal mental health services. In addition, Northern Ireland and the Republic of Ireland still do not have one Mother and Baby Unit.
  • Despite welcome funding being pledged for specialist perinatal mental health services in Wales, the nation still does not have an adequate level of services or a Mother and Baby Unit

Women and families must have access to specialist multi-disciplinary perinatal mental health services as part of a joined-up pathway of care their standard integrated pathway of care.

This is because:

  • Without an integrated perinatal mental health care pathway which features clear referral mechanisms, there is a real risk that women and families will not receive the right support at the right time, even though the specialist services they need exist.
  • It will ensure that other health and social care professionals have access to and receive ongoing training and advice from specialist perinatal mental health teams in their area. These professionals include GPs, health visitors, midwives, practice nurses, obstetricians, mental health professionals, and staff from voluntary and community organisations.

 

Download our campaign call

To help you ACT NOW, please download our campaign call and use it in your campaigning.

It’s only with your active support that we can ensure local decision makers, providers and commissioners heed the campaign calls and that women and families – in every area of the UK – will be able to access the right perinatal mental health support at the right time.

Real life stories

Elaine’s story

Elaine’s story (Chester) The birth of my son was very difficult. I had a retained placenta, which led to me haemorrhaging after he was born. A consequence of this traumatic experience was that I developed mild to severe postnatal depression, which eventually led to psychosis when my son was seven months old. Given electroconvulsive therapy … Continue reading Elaine’s story


Charlie’s story

Charlie’s story (Bridport) With all three of my children I struggled with perinatal mental health problems, including postnatal depression and post-traumatic stress disorder. During these extremely difficult times, I received excellent support from a number of specialist perinatal mental health professionals. They included those working at my Mother and Baby Unit, midwives, community psychiatric nurses … Continue reading Charlie’s story


Kirsten’s story

Kirsten’s story (Peterborough) The symptoms I showed during the pregnancy of my first child included OCD, general anxiety and low mood. I spoke to 11 different professionals before I started to receive help. This left me feeling exhausted, and I couldn’t understand why I had to tell my story so many times, and why I … Continue reading Kirsten’s story


Kathryn’s story

Kathryn’s story (London) My pregnancy sailed by in a buzz of baby shopping, scans and antenatal classes. All this changed less than 24 hours after our son was born. We had a very long and difficult labour, followed by a petrifying emergency C-section. We were then placed in the High Dependency Unit, but a few … Continue reading Kathryn’s story


Laura’s story

Laura’s story (Surrey/now in Southampton) When I fell pregnant, I had pre-existing mental health difficulties and a diagnosis of bipolar disorder. I was known to be high risk for postnatal ill health, but I received little support and few preventative measures were put in place. It seemed that the community mental health team and the … Continue reading Laura’s story


Maria’s story

Maria’s story (Bristol) My first son, William, was just one day old when he died in 2005. During and after my 11-year-old son’s and nine-year-old daughter’s pregnancies I struggled with a number of mental health problems. With Joel, I felt very anxious whilst pregnant with him, and then felt isolated and depressed following his birth. … Continue reading Maria’s story


Jenny’s story

Jenny’s story (Belfast) Four years ago I had my second child, Isaac. After he was born, I felt differently to how I had felt when his older brother, Sam, had been born. Something wasn’t right. I felt depressed and struggled to bond with Isaac. I also felt unable to look after Sam adequately. This put a … Continue reading Jenny’s story


Raj’s story

Raj’s story (Berkshire) My wife developed stress-induced psychosis when she was nearly 30 weeks pregnant. At the time, she saw me as an antagonist, and due to her condition I was subjected to mental and verbal abuse as my wife’s perception of reality was affected. Our GP offered us no clear advice or counselling at … Continue reading Raj’s story


Louise’s story

Louise’s story (Oxfordshire) I suffer from bipolar disorder and was treated with lithium. For five years my husband and I had raised with my psychiatrist the issue of us trying for a family, but she kept failing to find out about what changes to medication would be advisable before conception. Eventually, my husband did some … Continue reading Louise’s story


Ann’s story

Ann’s story (Hertfordshire) After my daughter’s birth I suffered from severe antenatal obsessive compulsive disorder [OCD] and lived with a crippling fear that something terrible was going to happen to her. At a time when I should have been enjoying being a new mum, I was gripped by panic and couldn’t even watch the news. … Continue reading Ann’s story


Peter’s story

Peter’s story (Newcastle upon Tyne) My daughter developed serious postnatal depression. Her condition deteriorated over a period of several months and culminated in a suicide attempt and a missing person’s search for two days. She had left me with her baby while she went ostensibly for a jog. When she failed to return, I raised … Continue reading Peter’s story


Joanna’s story

Joanna’s story (Exeter) Five days after the birth of my first child I experienced extreme anxiety and a sense of terror overwhelmed me. I was diagnosed with PND [postnatal depression], but I didn’t feel depressed, just incredibly anxious. I was prescribed antidepressants and gradually I started to feel better. But when I discovered I was … Continue reading Joanna’s story


Hannah B’s story

Hannah’s story (Bristol) After the birth of my son I developed mild postnatal depression [PND] and moderate anxiety. I suffered panic attacks and was fearful of being judged as a ‘bad mother’, as being incapable of looking after my child in the ‘right’ way. Despite regular visits to my GP, it was two years before I … Continue reading Hannah B’s story


Hannah’s story

Hannah’s story (Thirsk) I had a straight-forward pregnancy and gave birth to my first baby after an emergency c-section in 2009.When I started having irrational, racing thoughts and very strange behavior my community midwife sent me to my GP.  Things worsened and few days later, I saw a different GP who referred me to a … Continue reading Hannah’s story


Chris & Joe’s story

Chris’s story (Huddersfield) After my partner Joe suffered several miscarriages, we feared we would never be able to have a baby. But in 2010 we were delighted to welcome our beautiful daughter into the world. Joe was determined to be the perfect mother, but when she struggled to breastfeed, it led to feelings of severe … Continue reading Chris & Joe’s story


Becky’s story

Becky’s story (Dawlish) Two weeks after my baby was born I started suffering from severe postnatal depression [PND]. I began to have suicidal thoughts and couldn’t even look at my daughter or pick her up. The antenatal classes gave me unrealistic expectations about parenthood which I could not meet, and the attitude of one midwife … Continue reading Becky’s story


Sally’s story

Sally’s story (South Lanarkshire) I was diagnosed with severe postnatal depression [PND] after the birth of my second child in July 2013. The NHS only offered me medication and referred me to its Crisis team, who sent me home to listen to relaxation music. I was also told it would take 21 weeks on the … Continue reading Sally’s story


Michelle’s story

Michelle’s story (Bridgend) After the birth of my child I went into a downward spiral of thinking I couldn’t cope with having a baby. I was so distressed I was unable to sleep and even had to force myself to eat. I’d just had a son and desperately wanted to be happy, but I struggled … Continue reading Michelle’s story


Maps

UK Specialist Perinatal Mental Health Community Teams
(2017 data)

 

Red areas

no specialist team exists.

Pink areas

Some extremely basic level of provision exists but currently falls short of national standards and needs expanding.

Amber areas

Some basic level of provision exists but currently falls short of national standards and needs expanding.

Green areas

Women and families can access treatment that meets nationally agreed standards.

UK map: Specialist Perinatal Mental Health Community Teams (2017 data)

England map: Specialist Perinatal Mental Health Community Teams (2017 data)

London map: Specialist Perinatal Mental Health Community Teams (2017 data)

Scotland map: Specialist Perinatal Mental Health Community Teams (2017 data)

Wales map: Specialist Perinatal Mental Health Community Teams (2017 data)

Northern Ireland map: Specialist Perinatal Mental Health Community Teams (2017 data)

 

Mother & baby units


NORTH EAST / YORKSHIRE

1. Beadnell Mother and Baby Unit (6 beds) Northumberland, Tyne and Wear NHS Trust St Georges Hospital, Morpeth, Northumberland, NE61 2NU Tel: 01670 501869 2.Leeds Partnership NHS Foundation Trust Mother and Baby Unit (8 beds) The Mount, 44 Hyde Terrace, Leeds, LS2 9LN Tel: 0113 8555509

MIDLANDS

3. Barberry Mother and Baby Unit (10 beds) Barberry National Centre for Mental Health 25 Vincent Drive, Edgbaston, Birmingham B15 2FG 0121 3012190 4. Brockington Mother and Baby Unit (8 beds) South Staffordshire and Shropshire Foundation Trust St Georges Hospital, Corporation Street, Stafford, ST16 3AG Tel: 01785 221560 / 01785 221554 5. Derby Mother and Baby Unit (6 beds) The Beeches Unit, Radbourne Unit, Uttoxeter Road, Derby, DE22 3WQ Tel: 01332 623828 6. Nottinghamshire Healthcare NHS Trust Perinatal Psychiatric Inpatient Unit (6 beds) Ward A45, South Block, Queens Medical Centre, Nottingham, NG7 2UH Tel: 0115 924 9924 ext. 64479 or 0115 849 3391 (A new unit will replace number 6 from June: (8 beds) The Green Haven Perinatal Unit, Hope Wood, Foster Drive, Nottingham NG5 3FL 0115 9529481)

SOUTH / SOUTH WEST

7. Florence House (5 beds) St Ann’s Hospital, Dorset Dorset Health Care University NHS Trust 49 Alumhurst Road, Bournemouth, BH4 8EP Tel: 01202 584320 8. The New Horizon Mother and Baby Centre (4 beds) Avon and Wiltshire Mental Health Partnership and NHS Trust Southmead Hospital, Dorian Way, Westbury-on-Trym, Bristol, BS10 5NB Tel: 0117 414 7270 9. Rainbow Mother and Baby Unit (5 beds) The Linden Centre Pudding Woods Drive, Chelmsford, CM1 7LF Tel: 01245 315629 10. Thumbswood Mother and Baby Unit (6 beds) Hertfordshire Partnership NHS Foundation Trust 2 Bowlers Green, Kingsley Green, Harper Lane Nr Radlett,  WD7 9HQ Tel: 01923 633880 11. Winchester Mother and Baby Unit (10 beds) Southern Health Foundation Trust, Melbury Lodge, Romsey Road, Winchester, SO22 5DG Tel: 01962 897711

NORTH WEST

12. Manchester Mother and Baby Unit (10 beds) Andersen Ward, Laureate House, Wythenshawe Hospital, Southmoor Road, Wythenshawe, Manchester, M23 9LT Tel: 0161 291 6829; Fax: 0161 291 6821 Please note, although located in the North East, the Beadnell Mother and Baby unit is also able to take referrals from the North West. Please see the North East section for contact details.

SCOTLAND

13. NHS Lothian Livingston Mother and Baby Unit (6 beds) St Johns Hospital, Howden Road West, Howden, Livingston, West Lothian, EH54 6PP Tel: 01506 523000 14. West of Scotland Mother and Baby Mental Health Unit (6 beds) Leverndale Hospital, 510 Crookston Road, Glasgow G53 7TU Tel: 0141 211 6500

LONDON

15. Coombe Wood Perinatal Health Unit, (10 beds) Park Royal Centre for Mental Health, Acton Lane, London NW10 7FL Tel: 020 8955 4495/6/8 16. East London Mother and Baby Unit (12 beds), Homerton Hospital, Homerton Row, Hackney, London, E9 6SR Tel: 020 8510 8420 17. Channi Kumar Mother and Baby Unit (13 beds), South London and Maudsley NHS Foundation Trust, Bethlem Royal Hospital, Monks Orchard Road, Beckenham, Kent, BR3 3BX Tel: 020 3228 4255

NEW MOTHER AND BABY UNITS ANNOUNCED BY NHS ENGLAND IN 2017 (DUE TO OPEN 2018/19)

18. Kent and Medway NHS and Social Care Partnership Trust (Dartford)

19. Devon NHS Partnership Trust (Exeter)

20. Lancashire Care NHS Foundation Trust (Chorley)

21. Norfolk and Suffolk NHS Foundation Trust (Norwich)

 

 

Previous maps

Specialist perinatal mental health community teams (dots show areas in England and Wales in receipt of dedicated funding in 2016)

UK Specialist perinatal mental health community teams (2015)

 

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Counting the costs

The costs of not treating perinatal mental illnesses effectively are significant, making this lack of support a major public health concern.

Untreated perinatal mental illnesses have a wide range of effects on the mental and physical health of women, their children, partners and significant others.

They are also one of the leading causes of death for women during pregnancy and the year after birth.

The costs of undiagnosed or untreated perinatal mental health problems include:

avoidable suffering

perinatal mental illness can cause intense, debilitating, isolating and often frightening suffering for women.

damage to families

perinatal mental illness can have a long-term impact on a woman’s self-esteem and relationships with partners and family members.

impact on children

perinatal mental illness can have an adverse impact on the interaction between a mother and her baby, affecting the child’s emotional, social and cognitive development.

death or serious injury

in severe cases, perinatal mental illness can be life-threatening: suicide is one of the leading causes of death for women in the UK during the perinatal period.

economic costs

the economic cost to society of not effectively treating perinatal mental illness far outweighs the cost of providing appropriate services. Read the October 2014 report  The Costs of Perinatal Mental Health Problems’ by the London School of Economics and the Centre for Mental Health.

If perinatal mental health problems were identified and treated quickly and effectively, all of these serious and often life-changing human and economic costs could be avoided.

Everyone’s Business e-bulletins

To keep up to date with all the latest campaign news see e-bulletins below:

Everyone’s Business Summer 2018 e-bulletin pdf

Everyone’s Business Spring 2018 e-bulletin pdf

Everyone’s Business Winter 2017 e-bulletin pdf

Everyone’s Business Autumn 2017 e-bulletin pdf

Everyone’s Business Spring & Summer 2017 e-bulletin pdf

Everyone’s Business Winter 2017 e-bulletin pdf

Everyone’s Business Autumn 2016 e-bulletin pdf

Everyone’s Business Spring & Summer 2016 e-bulletin pdf

Everyone’s Business Special e-bulletin pdf

Everyone’s Business Spring 2015 e-bulletin pdf

Everyone’s Business Winter 2014 e-bulletin pdf

Everyone’s Business Summer 2014 e-bulletin pdf

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